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Wanted to start my own, so as not to get confused with Mike's (c20elephant) trials.
It all began when wife forced me to see our doctor in June/July about a persistent cough. Had X-ray which didn't tell them anything we didn't already know (Swiss cheese lungs due to multiple ribs broken in two traumatic incidents) Followed it up with a CT scan in early August. That showed a mass (nodule) in left upper love of 1.2cm sent me to pulminologist who said most likely emphysema,let's recheck in 3 months.

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Second CT scan done in November indicated it had grown to 1.7cm, so most likely not scar tissue. Set me up for PET scan.
PET scan reveals a lymph node in lung and adrenal glands both "illuminated" so set up for biopsy.
Biopsy of lymph nodes conducted Dec 7th. Only one was cancerous, showed non-small cell carcinoma, adenocarcinoma of an unknown primary (no tumor anywhere)
Got port o cath installed (for chemo), had brain MRI colonoscopy and endoscopy all three inconclusive.

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Had another biopsy on 1-18 of the left adrenal gland, and saw oncologist today for follow up.
No additional info or definitive results, so we are still stuck not knowing source of the cancer.
I will begin chemotherapy (3 cocktails) every two weeks starting on 2-7. We are going with some from the group that treats GI/intestinal cancers.
Wife is a mess, asked doc today what "worst case" scenario if chemo doesn't work is, she says 6 months if nothing works.
All this and I still have no symptoms other than a cough. Had we not gone to doctor, I would probably keel over before even knowing about it!

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I will post updates on treatment and results as possible.

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Cancer is the ISIS of the body, it sneaks around and terrorizes parts of your body. Prayers are with you and for a cure to wipe out cancer.
 

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I will post updates on treatment and results as possible.

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Fight it as hard as you can and try to keep your spirits up - we're all pulling for you!
 

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Let me begin by saying that is a FUBAR diagnosis for anyone to have, and prayers have been sent.

Now is the time to get aggressive. First and foremost, get a second opinion. Even specialists can be wrong, both in diagnosis and treatment options. Every insurance company I know of will foot the bill for a second opinion, and even if they don't, it's your life, so don't cheap out. Even if you love and trust beyond all else your current physician, get a second opinion in both diagnosis and treatment. If you haven't already, seek out the most advanced treatment facility and most important, the one with the best reputation. Don't rely on advertising claims, speak to people in the medical field. Most are very shy in offering opinions of other facilities and/or doctors, but be sincere and phrase your question thus depending on who you are talking to: "If it was your (child, father, brother), with this condition, who would you recommend they see or go for treatment?". In my dealings with medical staff, most have been very forth coming when the question poses them in a situation that ties back to one they love rather than just saying "If you were me.". I don't know the reasoning for that, other than I guess we just take our loved ones as more important than ourselves. Ask everyone you can, from staff to nurses to doctors to patients themselves. If it means you have to travel several hundred miles just to get the most knowledgeable based opinion, do it!

Good luck on an obviously shitty situation. Share your triumphs and your low points with us, as often, just having a place to share how you feel can help.
 

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Praying for you and your wife TF! I also second Tom S's suggestion about a second opinion.
 

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Thanks Tom and RR21. I had a second opinion, it was Vanderbilt Ingram cancer center. This was my request, we sent all scans and biopsy samples there for molecular level testing. Still no aid in diagnosis.
My former Primary Care Doc (he retired) and I sat down and he suggested the place I'm seeing now. He said going to Atlanta/Phoenix/Chicago for cancer treatment center of America is no better than the two I have. I asked him where he would go and he said first choice is where I'm going now. What sucks is not having a primary target, if there was a tumor somewhere we could attack from all sides, it would be so much simpler!
My aunt goes to Mayo Clinic in Rochester MN, it is close for them and one of her daughters works there.

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What sucks is not having a primary target, if there was a tumor somewhere we could attack from all sides, it would be so much simpler!
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I'm glad you got the second opinion regardless of the results. For all its expertise, today's medical field is still a guessing game, no matter what its participants claim. I recent read a book about two Israeli Dr.s who worked in the US. They polled Dr.s at several hospitals using the exact same set of records, and got a wildly diverse set of diagnosis's and recommended courses of treatments. That outcome isn't as scary as the fact that 6 months later, they sent the same records to the same Dr.s and different results - from the same Dr.s! In other words, many of the Dr.s didn't agree with what they had previously diagnosed and their treatment plan. That's scary, but it also means that sometimes, perhaps often, they can and do screw up on diagnosis's, predicting bad outcomes when often things turn out good. I pray that is the case for you!

In any event, don't discount the power of positive thinking as well as the power of prayer.
 

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Hang in there Mike, we will each fight our battles with vigor! Got your PM.

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OK, was gonna wait till round two, but here it is. Had chemotherapy on 2/7 and returned on 2/9 to have pump removed. No major side effects. One of the three "cocktails" causes me to be very sensitive to cold things. Doc said I may need a glove to get stuff from fridge, I can still get ice cubes and put in my tea glass but I feel it in fingertips. No weight loss or hair loss, no diarrhea or nausea.
Second round will be 2/21.

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I have something else to add. One other issue I have is my voice is nearly gone. Cannot talk for very long without sounding hoarse. Not sure if that is related to the non cancerous tumor in my left lung or the lymph node that is cancerous. Will address this with oncologist on Tuesday 2/21.

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Hang in there. My Dad was diagnosed with cancer 10 years ago, and my Mom 8 years ago. Both made it and are living healthy normal lives. Dad will turn 73 this year and mom will be 70.

I had a co-worker that passed last week from cancer, but it was caught in the way late stages, and was given 4-6 months to live. That was 8 years ago. He was in his late 60s. He always kept a positive attitude and I do believe this helps.
 

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Update after second round. Chemo is every two weeks, on Tuesdays, get two doses at infusion center after seeing the oncologist and then sent home with portable mini IV pump for third drug. It is infused over 48 hours. I return on the Thursday to have it removed and the port un-accessed.
So far my only issue is that one chemo drug causes me to be hyper sensitive to cold. Touching something cold causes numbness feelings in fingertips and very cold drinks make throat sore. I have had to reduce the ice in my sweet tea. Cancer marker was down, indicating it is most likely working.

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Update after second round. Chemo is every two weeks, on Tuesdays, get two doses at infusion center after seeing the oncologist and then sent home with portable mini IV pump for third drug. It is infused over 48 hours. I return on the Thursday to have it removed and the port un-accessed.
So far my only issue is that one chemo drug causes me to be hyper sensitive to cold. Touching something cold causes numbness feelings in fingertips and very cold drinks make throat sore. I have had to reduce the ice in my sweet tea. Cancer marker was down, indicating it is most likely working.

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:thumb:
 
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