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Old 01-27-2017, 03:36 PM   #1 (permalink)
TiredFarmer
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My Cancer Story

Wanted to start my own, so as not to get confused with Mike's (c20elephant) trials.
It all began when wife forced me to see our doctor in June/July about a persistent cough. Had X-ray which didn't tell them anything we didn't already know (Swiss cheese lungs due to multiple ribs broken in two traumatic incidents) Followed it up with a CT scan in early August. That showed a mass (nodule) in left upper love of 1.2cm sent me to pulminologist who said most likely emphysema,let's recheck in 3 months.

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Old 01-27-2017, 03:43 PM   #2 (permalink)
TiredFarmer
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Second CT scan done in November indicated it had grown to 1.7cm, so most likely not scar tissue. Set me up for PET scan.
PET scan reveals a lymph node in lung and adrenal glands both "illuminated" so set up for biopsy.
Biopsy of lymph nodes conducted Dec 7th. Only one was cancerous, showed non-small cell carcinoma, adenocarcinoma of an unknown primary (no tumor anywhere)
Got port o cath installed (for chemo), had brain MRI colonoscopy and endoscopy all three inconclusive.

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Old 01-27-2017, 03:49 PM   #3 (permalink)
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Had another biopsy on 1-18 of the left adrenal gland, and saw oncologist today for follow up.
No additional info or definitive results, so we are still stuck not knowing source of the cancer.
I will begin chemotherapy (3 cocktails) every two weeks starting on 2-7. We are going with some from the group that treats GI/intestinal cancers.
Wife is a mess, asked doc today what "worst case" scenario if chemo doesn't work is, she says 6 months if nothing works.
All this and I still have no symptoms other than a cough. Had we not gone to doctor, I would probably keel over before even knowing about it!

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Old 01-27-2017, 03:50 PM   #4 (permalink)
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I will post updates on treatment and results as possible.

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Old 01-27-2017, 04:13 PM   #5 (permalink)
otis
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Cancer is the ISIS of the body, it sneaks around and terrorizes parts of your body. Prayers are with you and for a cure to wipe out cancer.
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Old 01-27-2017, 06:10 PM   #6 (permalink)
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Quote:
Originally Posted by TiredFarmer View Post
I will post updates on treatment and results as possible.

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Fight it as hard as you can and try to keep your spirits up - we're all pulling for you!
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Old 01-27-2017, 07:47 PM   #7 (permalink)
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I don't know what to say TF, so sorry to hear this. You and your family are for sure in my everyday thoughts and prayers.
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Old 01-28-2017, 07:22 AM   #8 (permalink)
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Let me begin by saying that is a FUBAR diagnosis for anyone to have, and prayers have been sent.

Now is the time to get aggressive. First and foremost, get a second opinion. Even specialists can be wrong, both in diagnosis and treatment options. Every insurance company I know of will foot the bill for a second opinion, and even if they don't, it's your life, so don't cheap out. Even if you love and trust beyond all else your current physician, get a second opinion in both diagnosis and treatment. If you haven't already, seek out the most advanced treatment facility and most important, the one with the best reputation. Don't rely on advertising claims, speak to people in the medical field. Most are very shy in offering opinions of other facilities and/or doctors, but be sincere and phrase your question thus depending on who you are talking to: "If it was your (child, father, brother), with this condition, who would you recommend they see or go for treatment?". In my dealings with medical staff, most have been very forth coming when the question poses them in a situation that ties back to one they love rather than just saying "If you were me.". I don't know the reasoning for that, other than I guess we just take our loved ones as more important than ourselves. Ask everyone you can, from staff to nurses to doctors to patients themselves. If it means you have to travel several hundred miles just to get the most knowledgeable based opinion, do it!

Good luck on an obviously ****ty situation. Share your triumphs and your low points with us, as often, just having a place to share how you feel can help.
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Old 01-28-2017, 07:29 AM   #9 (permalink)
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Praying for you and your wife TF! I also second Tom S's suggestion about a second opinion.
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Old 01-28-2017, 10:35 AM   #10 (permalink)
TiredFarmer
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Thanks Tom and RR21. I had a second opinion, it was Vanderbilt Ingram cancer center. This was my request, we sent all scans and biopsy samples there for molecular level testing. Still no aid in diagnosis.
My former Primary Care Doc (he retired) and I sat down and he suggested the place I'm seeing now. He said going to Atlanta/Phoenix/Chicago for cancer treatment center of America is no better than the two I have. I asked him where he would go and he said first choice is where I'm going now. What sucks is not having a primary target, if there was a tumor somewhere we could attack from all sides, it would be so much simpler!
My aunt goes to Mayo Clinic in Rochester MN, it is close for them and one of her daughters works there.

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